The following is advice from a friend of ours, only in his early 40's, who is in a battle with ALS:
"Don't spend your day tied up with electronics. Go out and see the beauty of nature! Unplug and enjoy the moments."
"Your family deserves the best you, you can be."
"Never miss a chance to laugh or say I'm sorry. Never hold back your tears, they are cleansing. Never ever miss a chance to say I love you."
"Life is full of choices. For instance: my prognosis is death but I see it as an ETA. It's all in how you view it. You have to make a choice!"
Live each moment of your life, don't waste it on electronics. Love deeply. Laugh. Forgive. Apologize. Don't take one moment of life, family, faith for granted.